It has been a while since I wrote last. Although this blog is good for me because I get my feelings out, I guess sometimes I just want to pretend that nothing is wrong, that Zoe is as healthy as her big brother and Sister. So I shut myself off and therefore I wasn't writing.
We had a bit of a shock 3 weeks ago... We turned up to Zoe's Ophthalmologist appointment and we were told that the disease has now started in her Eyes. I was never really worried about that even though we knew there was a risk. I have read as much as I can on this illness and the percentage of People (young and old) with Stills which affects their eyes (Uvitus) is almost unheard of.... what I mean to say is that there is like 5% of cases! Ok so there are not many people out there with Systemic JIA and again Zoe's age of diagnosis is also extremely rare but I figured with a percentage like that we really didn't have much to worry about.
Willy on the other hand has been petrified that Zoe will go blind from the beginning. We now know after talking to her specialist that we just need to be very vigilant when it comes to her eyes.. If she says she has pain we take her straight to the hospital, they will then give her cortisone drops and if that doesn't help they will inject cortisone into the eye... and this can save her from going blind.
It is now 3° when we wake up and it takes most of the day for the temperature to reach around 15°. Of course this plays a big part in how much daily pain she endures. Our fire has been out of order because the pipping had holes in it but a new one was installed today, so I will light a fire for her as soon as we get home from Physiotherapy tonight.
It is treatment day tomorrow and with any luck all will go perfectly.
This was an entry just to touch base but I will write more another day. x
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